Huquqiy maslahat - bepul,tezkor, hammaga!
06.11.2025 - Kam uchraydigan (orfan) va boshqa irsiy-genetik kasalliklarga chalingan bolalarga yordam ko‘rsatiladi
- 41 marta o'qildi
“2026–2030-yillarda kam uchraydigan (orfan) va boshqa irsiy-genetik kasalliklarga chalingan bolalarga tibbiy va ijtimoiy yordam ko‘rsatishni tashkil etish bo‘yicha chora-tadbirlar dasturini tasdiqlash to‘g‘risida”gi Prezident qarori (PQ–331-son, 03.11.2025-y.) qabul qilindi.
Qarorga ko‘ra, 2026–2030-yillarda kam uchraydigan (orfan) va boshqa irsiy-genetik kasalliklarni davolash va oldini olishning asosiy maqsadlari etib quyidagilar belgilandi, jumladan:
♦ Davlat byudjeti mablag‘lari hisobidan bepul davolanadigan kam uchraydigan (orfan) va boshqa irsiy-genetik kasalliklar turini 5 tadan 10 taga etkazish;
♦ ushbu kasalliklarga chalingan bolalarning dori vositalari, maxsus oziq-ovqatlar va tibbiy jihozlar bilan ta’minlanish darajasini 95 foizdan 99 foizgacha etkazish;
♦ kam uchraydigan (orfan) va boshqa irsiy-genetik kasalliklarga chalingan bolalar salomatligini muhofaza qilish va tiklash.
2026-yil 1 yanvardan ushbu turdagi kasalliklarga chalingan 18 yoshdan 21 yoshgacha bo‘lgan bemorlar bepul tibbiy kuzatuvda bo‘ladi va davolanish ishlari davom ettiriladi.
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